Did I mention we're home? :)

McKinley in her beautiful helmet decorated by mom with the help of her good friend Kendra Farmer :)

The days surrounding coming home from the hospital are always so crazy that I'm often a little late letting people know. :)  We were discharged one week ago today and could not have been happier to all be home as a family again!  The look on Brooks and McKinley's faces when they see each other for the first time gets more priceless each time the older they get.
McKinley has been doing amazingly well. I keep saying that if she only knew what she had been through, she'd be in a lot more pain!  I think I hurt more than she does just knowing what all she has had done. :)  We have a follow up visit with the urologist and nephrology on Tuesday, and then a follow up with surgery on Thursday, where they will hopefully tell us when her ileostomy take down will be.  Her incisions are healing, and although they are very itchy and she scratches them a lot, they are healing beautifully, and we have steered clear of any infection.  Our latest problem is that we can't seem to keep her ostomy bags on.  This new ostomy site does not work as well as the old site for bag "stickage" so it's quite messy, and very frustrating.  I'm counting down the days until we may not need to deal with ostomy bags any more!!
The other newest thing that McKinley has had to undergo is that she now has a helmet strapped to her head 23 1/2 hours a day.  She looks like a motocross racer, or a hardcore rollerblader or something.  She needs the helmet because her head is severely enough flat on one side that it won't correct itself without the help of the helmet.  In classic McKinley fashion, she seems to be adjusting to it quite well.  The biggest annoyance so far is that she has a hard time falling asleep.  I can only assume it's quite uncomfortable to sleep in a helmet!  Other than that, she hasn't missed a beat.  She's her happy, smiley self and I can tell that she is sooo glad to be home.  And we are so glad to have her here!