The problem has been found....hopefully!

McKinley, Brooks and Me not long before our stay at Children's

So...we're still here. 17 days in the hospital and counting. 14 of those days came and went with McKinley only getting worse, not better, and us not getting any answers as to why.  Then came day 15, Friday night around 8pm we were told that McKinley would be going into emergency surgery.  During a routine procedure to place an ND tube they hit resistance, and couldn't figure out why.  After doing an ultrasound it appeared that she had duodenal intussusception, a very rare problem that had actually never been seen by the Dr's at this Children's Hospital. Thankfully, once they went in with a scope they realized that in fact that is not what it was, her problem was that her pyloric valve was incredibly inflamed.  So inflamed that it was completely blocking her stomach. The reason it was inflamed was because the balloon at the end of her G-tube was inflated inside of the pyloric valve, when it really is only supposed to be inflated inside of her stomach.  We're unsure of how long it has been that way but our suspicion is that it has been that way since January 5th, when she had the G-tube placed.
So, during the procedure they decided to place a G-J tube which is a feeding tube that bypasses the stomach. Today they started feeding her through that tube and so far she is tolerating her feeds.  They are increasing the feeds every 6 hours and so far so good.  They are still draining her stomach so she is not throwing up as much. At this point we are just waiting for the swelling to go down, I don't think there is much that can be done to expedite that process.  Her breathing is the main concern at the moment.  She's having to be suctioned every few hours because she can't breathe well if she's not suctioned.  It's probably a combination of her RSV and being intubated for her procedure on Friday. We're not sure when to expect that will get better either.
So...now we wait.  The question is, will we wait in the hospital or at home? It looks like they are leaning towards sending us home. We would love to be back together again as a family, but not before the time is right. We also want to be sure that her RSV is gone so that Brooks doesn't get it! We are praying for the Dr's good judgement and McKinley's speedy recovery so that we can get back to "normal" life...whatever that may be.... ;)